Well, Jerid's been asleep (sedated) for about 3 and a half days now. For the past 2 days, very heavily. The most I've gotten out of him are eyelid fluttering and I think that he tried to open them tonight, but couldn't.
So while he's been sleeping, here's what's been going on. Rick and Rose and Annie got here around 2:00 am Wednesday morning. We were back up and at the hospital by about 1:00 Wednesday afternoon. As I said previously, it was a quiet day for Jerid. The rigid bronch was still scheduled for Thursday. The only exciting thing that happened was that Jerid got another pneumothorax in his other lung. So he got another chest tube in this morning.
Today, Thursday, we were at the hospital bright and early for the big day. The bronch was scheduled for the afternoon, but we were told that if anything opened up in the morning they would let us know. So we waited, and waited and waited some more.
Around 3:30, the doctor asked to see us so that he could go over the procedure and get consent. Basically, what they plan on doing is a rigid bronch. The difference between this and the regular is that Jerid will be put under general anesthesia and instead of a softer tube put down his throat, it's actually a metal rod. Once in there, they will put a dye in to see a map of the lungs and see if any air is getting through the blocked part at all. If there is, that's good. They can use wires and tiny tubes and balloons to hopefully get it open. Of course it is done very slowly and gently so as not to cause any damage.
If all works well, and the airway is opened, they will put a stent in it. The stent in the left lung can stay in for a long period of time because it is covered in silicone. Because of the location of the one that will hopefully be put into the right lung, it has to be just the metal so that the air can move through it. Unfortunately, this can only stay in for about 2 weeks before it causes damage. So it will have to keep being replaced until it has trained the airway to stay open.
If you would like more information on the bronchoscopy procedure, follow this link:
http://en.wikipedia.org/wiki/Bronchoscopy
If you would like more information and pictures of stents, follow this link:
http://en.wikipedia.org/wiki/Stent
If this doesn't work, then more than likely, the next best course of action would be to do surgery where they would cut out the part of the airway that is closed. But it won't come to that, will it? This is where the chanting comes in.
The doctors were all wonderful today. Both docs who are doing the procedure sat down with us and explained it very well. One even drew us a picture. (Which Annie tried to help him with.)
In case you were curious about who's taking care of Jerid while he's sleeping they are as follows:
Dr. Iaa, a member of the lung transplant team
Dr. Gillespie, Interventional Pulmonology
Dr. Pocchotino, head lung transplant guy (one of the best in the country) who did Jerid's transplant
Dr. Sterman, who we just met today, and gave me his business card. Here's what is on it:
Associate Professor of Medicine
Associate Professor of Medicine in Surgery
Director, Interventional Pulmonology
Clinical Director, Thoracic Oncology Gene Therapy Program
Pulmonary, Allergy and Critical Care Division Department of Medicine.
WHEW! Now that's a business card.
Dr. Sterman and Gillespie are the ones doing the bronch tomorrow. Plus he has the whole ICU team of doctors and nurses round the clock.
So as you can see, he's in very good hands. Speaking of hands, Jerid's are very swollen with fluid. His whole body is. He's going to be so ticked when he wakes up. On the bright side though, no grapefruits or any large fruits to be found so far.
Anyway, back to today. Around 5:30, the doctor came and told us that the O.R. was backed up and they wouldn't be able to get in until around 9:00. A few minutes later, he came back and said never mind. It would be more like 2:00 am. So they booked Jerid for the first slot in the morning. Providing there are no transplants or guntshot victims, Jerid will get his bronch first thing around 7:30.
I think that's it for now. I am of course exhausted. We all are. Except for Jerid, that is. He's sleeping. We're going to be up early and I hope that it's for good reason. Although I won't be surprised if Jerid's bronch is pushed back, and back and back. I'll let you know.
Thanks and love to you all.
10.25.2007
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7 comments:
It's amazing how you can find time to keep us all up on things. We look everyday to see how things are moving along(or not moving). Hope they can get to him tomorrow.
Sending lots of hugs your way. Pass them around.
Chant Chant Chant Chant Chant Chant
Love Uncle John and
Aunt Cheryl
Yes, thank you for keeping us all posted. We are all on pins and needles waiting to hear how Jerid and you all are doing. I am still so glad you guys all have each other there. I wish we could all be closer for you too. It sounds like Jerid is in very good hands, and reassuring to hear about all of the doctors taking care of him. You know I will be following your links and researching the procedures. You are all in our thoughs constantly, stay positive and take care of each other. Please tell Jerid we love him.
Love always, Liz
WOW - Marin your ability to still keep a smile or still be funny during this trying time is amazingly awesome. Your the best. Jerid will come through this just like he has before and be home in no time. All our prayers and thoughts and chants and rain dances and everything else that is needed is with you guys. You are loved by so many. Thanks for keeping us updated. And on a lighter note, my business card kind of does look like that Drs. you were speaking about. Yea - no not at all.... Love Shannon (you know which one)
Hey Marin thanks for the updates You know my worrywort Mother asks me 5 times a day if anything has been posted I keep telling her Jerid will be fine he has just hit another bump in his road to recovery we will continue to pray for all of you kiss that baby girl for me. Love to all Tamara
It is now 10:29 a.m. now, and we are all waiting so very impatiently....but chanting all the good thoughts your way. Know this is going to be a long day for all of you, but we you are on our minds with each second that passes.
Love to all,
Aunt Janice
check blog at least 3 times a day..thanks for finding time to keep us all updated. i am heading for those other sites you posted now, and to do my chanting dancing and all the good stuff for you guys. love you all
aunt sally xxoo xo
Hi Guys. I just don't know what to say. We think of you and pray for you daily. We feel your pain but do not, I mean DO NOT give up or get discouraged. You have a lot of people that love you and one special lady ready for this to be over and get on w/ the great life you all deserve. It's a very bumpy, rough road but I can certainly assure you that it's all worth it. There's a life out there for you that you never though was possible. Hang in there and I can hardly wait to see you. Love you all and praying for you...come on I know you're ten times more stubborn than I am:) We'll check in soon...love you all.
Remember...Faith doesn't make something easy, it makes it possible.
Love ya, Mike and Paula
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